RUN RARE: The Rarety 5K is an endurance event organized by Rarety, a nonprofit founded by Taylor, a student living with a rare disease. The event aims to raise awareness for rare diseases, honor the experiences of those affected—especially young people—and foster unity among participants of all abilities. RUN RARE supports Rarety’s programs in education, youth empowerment, outreach, and resources for families. The event highlights the challenges faced by the rare disease community and encourages inclusion, support, and recognition of the strength and resilience of individuals living with rare conditions.